Getting Bullied Wearing Wigs

Growing up with alopecia felt like a battle I could never escape.

It was something I tried so desperately to hide — but everyone could tell.

The wigs I wore as a child looked artificial. There was no denying I had one on.

At school, kids teased me. They’d mock the way my hair parted — “Why does your hair grow in a circle like that? Are you wearing a wig?”

All I could manage was a soft “no,” shaking my head.

Because the truth was unbearable.

I couldn’t accept my own diagnosis, let alone let others know.

They’d think I was gross.

They wouldn’t want to be my friend.

They’d hate me.

So, I told myself: My best chance at belonging is if no one ever finds out.

I just wanted to be normal.

I remember one time, a soccer ball was deliberately kicked at my head — an attempt to knock my wig out of place and “prove” their suspicions.

When it happened, I calmly walked to my gym teacher and asked to go to the bathroom. I didn’t look him in the eye — I was too embarrassed. But he knew. He let me go.

I rushed into the stall and fixed my hairline as quickly as I could. Then I walked back into the gym like nothing happened. I didn’t face anyone. I didn’t say a word.

I just kept pretending I was normal. That my hair was real. That I belonged.

There was another time — a cruel game made up at school. The goal was to expose whether the latest rumor about someone was true.

For me, the rumor was that I wore a wig.

The game was this: one person pulled another’s hair until they yelled “ouch!” — the idea being if you didn’t feel it, it must not be real.

I had no choice. I played along. I screamed “ouch!” at what I guessed was the right moment, even though I didn’t feel a thing.

But I knew the truth.

I hadn’t fooled them.

The giggles after the soccer ball, the whispers in the hallway — they knew.

Still, I kept showing up. I kept going to events, hanging out with friends, attending school, doing everything I could to prove that I was “just like everyone else.”

I denied the teasing, denied the questions, prayed someone would change the subject when it came up.

Because if they found out, I would be a freak.

And I just wanted to be accepted. Understood. Liked.

What It Took to Finally Tell Someone

It wasn’t until years later, through therapy, that I started confronting the pain I had pushed down for so long.

Therapy forced me to speak about things I had buried — and in doing so, I started using my voice again.

I became accountable for my own healing.

And healing meant speaking up.

Sometimes that meant having hard conversations with the very people who hurt me.

I found that writing things down helped. There was something therapeutic about putting pen to paper. It gave me clarity — and courage.

When I had to say those words out loud, I read from the page. It kept me grounded. It helped me get through it without freezing up, softening the truth, or losing my train of thought.

Reading from a letter meant I didn’t have to make eye contact. I didn’t have to read their expressions. I just had to get through it — my truth, uninterrupted.

Some people had no words in response but appreciated the honesty.

Others were thankful to understand me better, and respectfully asked for time to process.

That was enough.

Because once I said it — I could breathe again.

And little by little, the things that once triggered me… stopped happening.

And if they did happen again?

I had the right to speak up.

I could say gently, “Hey — that actually hurts me. Can you not do that?”

That’s what healing looks like.

That’s what reclaiming your power feels like.

Learning to Speak Up

Over time, I started saying how I felt more often. I started saying “no” when something didn’t feel right.

I spoke up when I disagreed, voiced my opinions, even chatted with strangers.

And eventually, I found myself sharing about my alopecia — for the first time — with someone new.

It was a hairdresser. I knew they’d figure it out anyway. But instead of hiding, I chose honesty.

What followed blew me away.

They shared stories of other clients with alopecia. They told me about their journeys, what worked for them, how they coped.

I offered my own tips — advice I wish I had known sooner.

And I left the salon inspired. Energized. I imagined another girl hearing those same tips I’d just shared. I imagined her feeling a little more hopeful.

And that’s when it hit me:

My pain, shared honestly, could actually help someone else heal too.

Why I’m Writing This

I still struggle with words.

I still stumble when I speak, still feel guilt for expressing myself.

But this blog has become my safe space.

My outlet.

My voice.

If you’ve read this far — thank you. Truly.

You’ve given me the gift of being heard.

For the recovering hearts,

Jenna

If this story resonates with you or someone you know, I’d love to hear from you. 💌 Drop a comment, share your story, or send a message — let’s create a space where we feel seen. 🫶🏻

Hair Isn’t Just Hair: Living with Alopecia, Navigating ADHD, and Finding My Identity

Alopecia is a disease—an autoimmune condition where the immune system mistakenly attacks hair follicles, treating them as a threat. There are three main types:

  • Alopecia Areata – Patchy baldness on the scalp or other parts of the body
  • Alopecia Totalis – Total baldness of the scalp
  • Alopecia Universalis – Total hair loss across the entire body

I have Alopecia Areata.

It started when I was just three years old — one small bald patch. My parents took me to the doctor, and the advice was simply to wait and see. Thankfully, my hair grew back. Everyone forgot about it… including me.

Eventually, I went on to have thick, beautiful hair — so thick my mom could only twist an elastic twice for a ponytail.

Losing My Hair, Losing My Identity

Then something changed. My grandpa passed away when I was around eight, and it was the first time I truly experienced grief. Shortly after, I started losing hair again — only this time, it was much more noticeable.

Another doctor visit followed. This time, I received a diagnosis: Alopecia. The doctor pointed out “exclamation hairs”—thin at the base, thicker at the tip. They’re a telltale sign that hair loss is progressing.

There’s a gut-wrenching feeling when you step into the shower and watch chunks of hair fall out. Some days are better. Others, worse.

I kept asking: Why me? No one else in my family had this. I was angry. Was this a test? A punishment?

I imagined life as a lottery. Some win health, beauty, and fortune. Others, like me, get dealt invisible pain and visible difference.

I never wanted to complain to anyone else. Instead, I just wished I could pretend I was like everyone else.

Hiding became my shield. However, the wind terrified me most—what if it blew just right and exposed my secret to the world?

Sometimes I’d trace the bald patches with my fingers, as if the shapes could explain why they existed. Strange circles. Mirrored patterns. Like brain scans. Or inkblot tests used to decode your mind.

Eventually, I gave up asking doctors. The treatments failed. Hope drifted further away until it disappeared completely. I surrendered.

But surrender didn’t bring peace. Instead, it felt like paralysis. I had accepted a version of myself I never wanted to be. I was no longer fighting for answers—I was simply surviving without them.

Still, those cards I was dealt led me here. They forced me to find strength I didn’t know existed. I learned what it means to crawl upward from rock bottom.

What Alopecia Took Away From Me

Alopecia took away pieces of my femininity. The intimacy of someone running their fingers through my hair. The simple, sensual feeling of wind in my hair, water rinsing over my scalp. All of those moments were taken from me.

Sometimes, I long for those cinematic gestures. The ones where someone tucks a strand of hair behind your ear. Or gently pulls it in a passionate moment. Unless there’s a cure, I may never know what that feels like.

Having someone touch my wig is something I deeply avoid. It’s not what I want them to feel.

Above all, I miss freedom. The freedom of no limitations and no fear. That’s the hardest part.

What It Feels Like to Wear a Wig

Wearing a wig feels like putting on a tight, itchy net. Even the finest lace itches. I try not to think about whose hair it once was. Instead, I pretend it’s mine.

Most days, it feels stifling—too tight, too hot. Sometimes the glue doesn’t hold. Or the style I want isn’t possible. It can feel like a cage I can’t escape.

I’ve lost count of how many times I’ve wanted to rip it off and throw it across the room in frustration.

But I know I can’t. I know I have to wear it—because it’s the only thing that helps me feel okay in this world.

The Strength I Needed to Live With Alopecia

Denial was my biggest coping strategy. I told myself the wig was my real hair. I told others the same. As a result, I denied myself space, voice, boundaries—even feelings.

It takes radical strength to carry this every day and pretend everything’s fine. You endure silently, without ever expressing the chaos inside.

Over time, I’ve changed. I’ve rebuilt. The girl I was is almost unrecognizable. Looking at old photos, I see the fear in my eyes. The tension in my smile.

Discovering I Also Have ADHD

Therapy helped me uncover more of myself. I wasn’t just living with alopecia—I was also living with undiagnosed ADHD.

There were signs. I would forget what I was saying mid-sentence. I lost things constantly. Focusing became nearly impossible. As a result, I blamed myself and felt defective—like I was broken.

What ADHD Feels Like for Me

Then I found others with ADHD online. I laughed at their reels, watching the humor unfold—and in those moments, I saw pieces of myself reflected back.

For the first time, I realized: maybe I wasn’t broken. Maybe I was simply different. That discovery changed everything.

What I’ve Learned About Being Neurodivergent

Being neurodivergent doesn’t mean you’re less intelligent. It means your brain processes things differently. Some of us learn visually. Others need movement. Neurodivergence works much the same way.

Now, when my brain blanks or I freeze, I have tools. I understand what’s happening—and I know I’m not alone anymore.

The Latest Treatment for Alopecia: Litfulo

There’s no cure yet. However, in 2023, Pfizer released Litfulo, the first FDA-approved treatment for Alopecia Areata. It’s a JAK inhibitor, designed to regulate immune response.

While it’s promising, Litfulo carries serious side effects:

  • Lowered immune function
  • Risk of serious infections
  • Blood clots
  • Elevated liver enzymes
  • Potential long-term cancer risks

After reviewing these risks with my doctor, I’ve chosen to wait. For now, it’s not the right path for me.

This is my personal choice—not medical advice. Please consult your doctor for your own situation.

In the past, I tried creams and injections. They only brought temporary results. I still remember my mom gently applying numbing cream before those appointments. Her love softened the pain.

She was an incredible mother. I’m endlessly grateful for everything she did.

Until there’s a safe cure, we live with hair loss together.

With love,

Jenna

🔗 Learn more about Litfulo on Pfizer’s site

✨ Are you navigating alopecia or ADHD too? Let’s talk about it—drop a comment below or share this post with someone who needs support. We’re in this together.

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